Your Privacy

Your and your child's privacy and confidentiality are very important to us. As with all research studies, there is a possible risk of loss of confidentiality. This means someone might see information that identifies you or your child when they do not have permission. The risk of this happening is very small, but may grow in the future.

The ECHO Data Analysis Center will maintain information in secure databases for research only. The ECHO Data Analysis Center will store your and your child's address and contact information separate from other research information and samples. We will keep all information and samples in locked rooms or cabinets or in secure computer systems.

This study is being overseen by the Western Copernicus Group (WCG) Instititutional Review Board (IRB). An IRB is a group of people who perform independent review of research studies to protect the rights and welfare of participants. You may contact an IRB staff member by phone at (855) 818-2289, or by email at [email protected] if:

• You have questions, concerns, or complaints and you are not getting answers from the research team.

• You want to talk to someone else about the research.

• You have questions about your and/or your child’s rights as research participants.